There are a number of support organizations located around the world devoted to supporting those impacted by disorders of the Corpus Callosum. These organizations will typically have helpful materials for those recently diagnosed and opportunities to meet others with lived experience and allies.
NODCC
Our mission is to enhance the quality of life and promote opportunities for individuals with disorders for the corpus callosum.
NODCC, mission statement.
Location: United States of America
Year founded: 2002
The National Organization for Disorders of the Corpus Callosum (NODCC) is a 501(c)(3) nonprofit established to support individuals with disorders of the Corpus Callosum, their families, and professionals. Continuing the initiative of The ACC Network, started in 1989, NODCC continues to focus on improving and supporting the lives of individuals with disorders of the Corpus Callosum.
AusDoCC
To support individuals, families and caregivers affected by a disorder of the corpus callosum (DCC).
To influence health professionals, communities, service providers, educators and governments to achieve our vision.
AusDoCC, mission statement.
Location: Australia
Year founded: 2012
Australian Disorders of the Corpus Callosum (AusDoCC) provides support and resources to those who are impacted by disorders of the Corpus Callosum, their families, and caregivers. Started by mothers of children with Corpus Callosum Dysgenesis, AusDoCC is continuing to raise awareness of corpus callosum disorders.
Corpal
Supporting those affected by ACC or Aicardi Syndrome.
Corpal.
Location: United Kingdom
Corpal is a not-for-profit support group and charity run by parents, families, and carers of children and adults who have ACC or Aicardi Syndrome. Corpal provides resources and support online, and is actively raising awareness of these conditions in the United Kingdom.