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Ellie White Foundation for Rare Genetic Disorders

Mission: To fund research to develop a cure for Wolfram Syndrome and other rare genetic disorders.

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Eye Hope Foundation

The Foundation’s mission is to stimulate and support the research for treatments that can stop the progression of Wolfram Syndrome as well as treatments that will restore the damaged cells.

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Monogenic Diabetes Registry of the University of Chicago

Maturity-Onset Diabetes of the Young (or MODY) is a term used to encompass a group of monogenic forms of diabetes

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Request Materials

Thank you for your interest in our research and reagents. We make all possible efforts to make available the published reagents generated in our lab.

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Snow Foundation

The Snow Foundation is a collective voice for Wolfram syndrome patients, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss, and neurodegeneration.

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Unravel Wolfram Syndrome

We have established The Unravel Wolfram Syndrome Fund through Washington University in St. Louis School of Medicine to provide financial support for Dr. Fumi Urano’s research group as they work to secure new treatments and ultimately a cure for Wolfram syndrome.

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Wolfram Syndrome (OMIM)

Online Mendelian Inheritance in Man (OMIM®) is a continuously updated catalog of human genes and genetic disorders and traits, with particular focus on the molecular relationship between genetic variation and phenotypic expression.

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Wolfram Syndrome Germany

This website is intended to inform those affected, relatives or interested parties about the rare Wolfram syndrome, its symptoms, possible course and possible treatment methods as well as the current state of research.

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Wolfram syndrome patients support group

This site is intended to aid those who are affected by Wolfram Syndrome (DIDMOAD).

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Wolfram Syndrome UK

Our aim is to raise as much awareness of this syndrome as we can.