Next month we will begin enrolling currently untreated children with TS, ages 6-17, in a treatment study. The research study will compare an investigational product, EBS-101 a.k.a. ecopipam, to a placebo (inactive substance). Neither we nor the patient will know which of these the child is assigned to, but the assignment is tracked for comparison […]
I just saw this abstract from 2 years ago. The authors looked at back at the medical history at initial presentation from 60 children with Tourette syndrome. Most (60%) had multiple motor tics during their “first tic episode” (a term not defined in the abstract). Children who had phonic tics initially were older.
In June of this year, the Tourette Association of America chose Washington University as a Center of Excellence! This designation recognizes the longstanding breadth and depth of expertise in patient care and research of our colleagues here at WUSTL and of the Greater Missouri TAA chapter. Hooray and thank you! However, we know we haven’t […]
Our paper on “the urge to blink in Tourette syndrome” is out. Brief explanation here Full text here
ADHD is really common in people with tics: at least 50% of children with tics also have ADHD . What about the other side? I mean, how common are tics in children with ADHD? Until recently, I would have said, “well, more common than in kids without ADHD.” That’s true, but recently I have begun […]
Recently someone with TS wrote me to say that he had discovered a trigger for tics and a potential treatment that might apply to others. I applaud his careful observations and willingness to share. But how can we move this observation forward? After all, numerous potential cures to TS have been proposed, ranging from antibiotics […]
What can I do for my child with tics? A mother of a child with tics emailed me to ask about treatment options, including information about medical cannabis and a dental device that some tic patients have tried. Here are my current “big picture” thoughts about this question. The first question is whether s/he needs […]
The results are in! We collected 33 votes (see “Oops” below to check whether your vote counted). We will use this information to guide our application to TAA. Stay tuned by connecting with the chapter or following the WashU Tics page on Facebook or @NewTics on Twitter.
We have just published a revised description of the software that runs TicTrainer.com, which is meant to help people practice tic suppression in a video-game-like format with help from a third party observer (like a parent or clinician). Here is further information.
See this link for information about recently-published research from Wash.U. combined with several other research groups.
A couple of our recent study volunteers had serious problems with what you could variously call sudden tantrums, explosive outbursts, or brief violence. Of course, kids with tics can have all the problems anyone else can have. But about 1 in 5 children with Tourette syndrome have experiences that have been called “rage attacks.” These rage […]
Recently, two different families asked me about whether it was safe for their child with tics to take medication for ADHD. Short answer: yes, it’s safe. Here’s the long answer. ADHD is very common in children with tics—nearly half of children with Tourette syndrome (TS) have ADHD. So the question comes up often. First I […]
In our study of children whose tics began just over the past few months, I have encountered several parents who have been hesitant to have any discussion at all with their child about the tics. Here are my thoughts on the subject. Behavior therapy experts recommend creating a “tic-neutral environment.”1 In part, this means that […]
With Thanksgiving coming up this week, we would like to thank the many people who have been important to our work on Tourette syndrome and tic disorders here at Washington University. First, thank you to all of you who have been our patients over the years. You have taught us a great deal not only […]